Saturday, February 2, 2013

I have to admit, I didn't see that one coming...

*Cell phone rings*
Me: "Hello?"
Phone: "Hi, is this Chelsea?"
Me: "Yes."
Phone: "Hi Chelsea, how are you doing?"
Me: "Good, thanks. How are you?"
Phone: "Good. Thanks for asking. Well, your test came back positive for Celiac disease. Your doctor  (Doctor #1) recommends a gluten-free diet."
Me: ", okay."

After this conversation we entered a roller coaster ride of questions and answers.

I had gone to the doctor because I'd been having pretty significant stomach issues. I'd get sick very easily. Often, I wouldn't eat because I was afraid of getting sick, but the lack of food would then make me sick. Several doctors trips occurred, but I wasn't getting better. Finally, I was tested for celiac and also scheduled to have an allergy test.

I found out I had celiac and then I went to have the allergy test a few days later (just to see if there were any other problems.) When I had my allergy test, the doctor (Doctor #2) told me I had actually scored a very "low positive" on the celiac test. He wanted me to have a scope before they made me get on the diet. This left me feeling that we may have overreacted. We felt fairly confident I didn't really have celiac disease.

When I went in for the consultation of my scope, the doctor (Doctor #3) told us that even though I scored a "low positive" on the test, he was fairly confident I WAS celiac. He said he had scoped many people who had actually scored in the "normal" range on the celiac test, but once they were looked at it was determined they had celiac.

About a week later, I got a scope. Jordan thought it was pretty funny to see me wake up from a drug-induced sleep. (He even recorded some of it :) ). The doctor (Doctor #3) told Jordan (while I was asleep) that my insides looked normal and didn't show the usual signs of celiac, but they were taking a biopsy. Maybe I didn't really have it?

About 6 days later, I got another call from the Doctor (Doctor #3). He told me once again, that I do have celiac and I need to go on a gluten-free diet.

A few tears, extra dollars spent on gluten free foods, and gratitude for the hopes of better health later, I sit here typing this post.

It's been hard. Especially when I think of all the wonderful foods I can't eat (at least not in the way I am used to.) My chicken sandwich at Red Robin, my Meatball Marinara from Subway, and mine and Jordan's beloved Oreo's to name just a few. But, I am learning how many options there are and that I will make it! And, I believe it will be worth it.

The other day, Jordan read me a scripture about our weaknesses turning to strengths and challenged me to thank God for my Celiac. I did, and I will try to continue to, even though it is hard.

P.S. Special shout out to my family for supporting me in this, the doctors who were all wonderful, and for Karin, especially for making me some gluten-free Oreos :)

My new and improved Gluten-free shelf of my pantry.


  1. Chelsea - you are the best! Your life has inspired me to be a better person. I am grateful to call you my daughter.